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Sunday, December 30, 2012

No Resolutions—Hope for the New Year


Since I didn’t have to wake up early this morning, I did. I lay there thinking about how this year has gone and pondering my hopes for the New Year. I don’t like resolutions, so I decided on hopes this year. After several minutes of deep thinking, I tried to go back to sleep, but Katrina decided to start yowling at the top of her cat lungs.

I checked Facebook to see where my blog rated this morning in Healthline’s best health blog of the year contest and saw a post by author Linda Apple that said, “A New Year’s Resolution is something that go in one year and out the other.”  Linda said that’s why she sets goals instead of making resolutions.

I liked the idea of setting goals too. A goal should be measurable so you can see your progress. For instance, instead of  a resolution, “I’m going to lose weight,” you could set a goal to “Lose five pounds by Valentine’s day.” Makes more sense, doesn’t it?

Still, I’m going with New Year’s Hopes this time, simply because hope is so important. Of my many hopes, I chose five to share with you.

  1. I hope that real progress is made to find a cure and effective treatment for Alzheimer’s. I’m not hoping for something that might work someday—I want results NOW. With 5.4 million people in the United States living with Alzheimer’s, I hope that researchers find therapies that really make a difference in their quality of life and their caregivers’ quality of life. My hope is that a prevention will be found so that as we Baby Boomers age, the projected 10 million cases of Alzheimer’s doesn’t happen.
  2. I hope my family stays healthy. This has been a tough year for my family. In November, my brother Donnie lost his long battle with debilitating strokes brought on by brittle diabetes. A scant three weeks later, my thirty-nine-year-old niece Angie lost a year-long fight with colon cancer. My cousins Bonnie and Alyce died and my Aunt Lavera died from Alzheimer’s. When loved ones leave this world, we feel an emptiness that can’t be filled. They are alive in our memories, but how we miss being able to joke with them and hug them close to our hearts. Our family has lost enough to last a long time. So my hope, and prayers, are that my huge, dysfunctional family stays healthy and happy throughout the year(s) ahead.
  3. I hope for World Peace. Okay, I know that is a huge order, but if I’m going to hope, I might as well hope big. I know from the way Vietnam affected Jim that going to war and killing other human beings is a burden that rests heavy on a soldier’s soul. So many aspects of war leave both visible and invisible scars. Each soldier’s death is a tragedy, not just for the people who love them, but for all of us who reap the benefits of freedom.
  4. I hope for school safety. I hope that parents can send their children to school with confidence that they learn in a safe environment. I hope that real solutions are found and the safety of our children are put first, and that we realize there are no simple answers. I hope that serious thought is given to making school a safe haven instead of the status quo of political rhetoric and special interest groups.  
  5. I hope for HOPE! No one in this country should be without a way to fulfill his or her basic needs. I hope for homes for the homeless, jobs for the unemployed, and food for the hungry. I hope for emotional needs to be met—love for the lonely, friends for the outcasts, family that is supportive, empathy for the struggling, and compassion for the less fortunate.

I have many other hopes on my list. It really isn’t so important what you or I hope for, but that we never lose hope. The final hope that I’m sharing with you today is that you have a New Year filled with health, happiness, and love.


Copyright © December 2012 by L. S. Fisher
http://earlyonset.blogspot.com

Friday, December 28, 2012

MRI – Diagnostic Tool for Alzheimer’s and FTLD


When a young person develops dementia, physicians have a difficult task of determining the underlying cause. If a familial disease exits, it is easier to look at a biomarker of that particular disease, but in many cases, there is no family history and the long, painstaking process of elimination begins.

When Jim developed dementia, our process to diagnosis was a complicated path with many twists and turns. One of the early tests was an MRI (magnetic resonance  imaging) which oddly enough was determined to be “normal.”

A year later, after an abnormal SPECT (single-photon emission computed tomography) scan, the neurologist ordered a second MRI. Unlike the MRI a year sooner, this one came back with a transcript that listed several abnormalities. It doesn’t seem to me that Jim’s brain would change that much in a year, so I often wondered if clues were missed in the first MRI. Perhaps they were looking for a brain tumor and didn’t see one, or could the person who read it not notice that he was looking at the brain of a forty-nine year old man?

Regardless of the issue, I was disappointed that the initial MRI didn’t show the changes in Jim’s brain a year sooner. It delayed our finding out that his forgetfulness and loss of skills was a brain disease and not some kind of mental issue.

An MRI is a valuable diagnostic tool when the information is carefully interpreted. A new study at Perelman School of Medicine at the University of Pennsylvania has shown a seventy-five percent accuracy differentiating between Alzheimer’s and FTLD (frontotemporal lobar degeneration). FTLD often affect younger people and is the most common form of dementia for people under age sixty-five.

Some of the methods previously used to accurately determine the difference between early onset Alzheimer’s and other types of dementia were more invasive—for example, a lumbar puncture. Often, the real cause was not known until autopsy, as in Jim’s case. After ten years of numerous tests, treatments, and five years in a nursing home, we finally learned that Jim’s Alzheimer’s type of dementia was specifically corticobasal degeneration. It was a disease I had never heard of and had not once been offered as the diagnosis.

I know the agony and frustration a family goes through while trying to uncover the underlying cause of a loved one’s dementia. Maybe in the big picture, it doesn’t always make a lot of difference in the treatment. It can make a difference in whether the side effects of some of the medication is worth the benefits especially if the drug therapy targets Alzheimer’s plaques, but no plaques exist with the disease your loved one has.

Also, you wonder at what point the tests become more expensive than they are worth. If an MRI can screen for Alzheimer’s and FTLD, a more expensive PET (positive emission tomography) or invasive lumbar puncture may not be necessary. Medication that helps with the symptoms of Alzheimer’s could be targeted to those that it helps rather than given to everyone with dementia symptoms.

The researchers who conducted this study used other methods to confirm the MRI results. Since the MRI could differentiate in seventy-five percent of the cases, only the remaining twenty-five percent who could not be determined would need further testing.

This is progress using a test that has been around since the early 1980s. The results of this new study increases the possibility that MRIs can be used to measure disease progression in clinical trials or to determine the effectiveness of drug therapies.

Personally, I’m for anything that helps families learn what type of dementia their loved one has and for diagnostic tools that can streamline clinical trials.

Copyright © December 2012 by L.S. Fisher
Earlyonset.blogspot.com

Sunday, December 23, 2012

Simply Wonderful Time of the Year


This Christmas season, I’ve enjoyed driving around and seeing the elaborate light displays. It seems that some people add to their displays each year and just when you think they can’t cram one more display on their lawn they go and prove you wrong.

“I think I found where the Griswolds live,” I told my son a few weeks ago.

“Was it on Highway 50, toward the edge of town?” he asked.

“Yes! I thought they lived on Highway H, but now I’ve decided this is where they live.”

This weekend, I saw a special on TV about people who spent months setting up their Christmas lights. These are people that had miles and miles of electric lights, homemade displays, and fuse boxes that looked like they would serve a small city. They involved their entire family in the elaborate annual productions. One of the kids made a statement that made me realize the motivation behind this way overboard lighting exhibition. “I thought working on the lights was perfectly normal and that everyone did it,” one of the girls said. I guess if this is how someone wants to celebrate the holidays, more power to them. Literally. 

Maybe part of the reason I don’t quite “get” these elaborate celebrations is because when I grew up, Christmas was a simpler holiday. We had a cedar tree with a few strands of garland, popcorn strung on thread, icicles, and colorful bulbs. I can remember being really worried if we didn’t have snow because I was afraid Santa wouldn’t be able to get his sleigh to our house.

Some people become almost frantic to spread the joy at Christmas time, while others feel like they are letting their families down because they can’t seem to find the appropriate “happy holidays” feeling.

Perhaps one of the hardest things to accept is that you can’t force someone to have an elaborate or happy holiday because that is how it has always been for you. Over the many Christmases I’ve seen in my lifetime, I’ve had good holidays and sad holidays, white Christmases and blue Christmases.

I think my peace with the holidays came with modifying my expectations. I’ve found that if I expect the holiday to be something extraordinary, I may be disappointed. If I expect it to be a time of peace and restfulness, and that is what happens, I’m perfectly content.

Holidays at our house changed with Jim’s dementia. I learned that we had to keep the holidays simpler to keep from upsetting him. A lot of glitz and holiday cheer would leave him confused and looking for the photos I had put away. We learned to adapt.

Simpler holidays fit into my plans better too. As a caregiver, I was tired all the time. It was hard to muster up the energy to do all the little things that I had done in the past. I found alternate ways of celebrating the holidays when I couldn’t spend hours shopping. I started buying certificates of deposit for my grandkids’ education. Years of putting money aside began to pay off this year when my oldest grandson began college.

During this holiday season, if you are a caregiver, give yourself the gift of a simpler holiday. Do the things you love to do and skip the things you do just because it’s expected. If you’d rather stay home and watch old Christmas movies and drink eggnog or a cup of cocoa, hey, that’s what you should do. Don’t let others “guilt” you into making the holiday something that doesn’t work for you anymore. If you want to buy cookies instead of baking from scratch, then do it. But if you love making sugar cookies or homemade candy, then find time for it or recruit help so that it more enjoyable.

One of the things that we enjoyed doing even after Jim was in the nursing home was to load up and drive through some of the light displays set up at the state school. Of course, we were always looking for the Griswolds too. As for me, I plan to have a simply wonderful Christmas time. I want to relax, enjoy, and be selfish in celebrating the holidays in my own way.

My Christmas wish for you is that you celebrate the holidays in a way that brings peace and joy in your heart.

Copyright © December 2012 by L.S. Fisher
www.earlyonset.blogspot.com

Friday, December 21, 2012

The Mayans May Be a Joke, But They Weren’t Funny


The biggest jokes going around on the Internet are about how today is predicted as the end of the world per the Mayan calendar. Of course, most of us just see it as a joke since we’ve gone through many such dire predictions during our lifetimes. 

No, it wasn’t always the Mayans, it’s was usually some fringe religious group who claimed to have a direct line to God’s ear. Their feelings were usually expressed as “the  world is going to end because we’ve turned  into a cesspool of humanity”  and "we" or possibly "they" deserve to be cremated from the face of the earth.

I have to admit that I haven’t felt too well the past week and sure haven’t had time to give any credence, much less joke time, to the Mayan end of the world. As far as when that event is going to happen on a global basis, I guess I’ll just have to go with what Grandma Whittle told me when I was a child and rumors of the “end” were rampant. “Not even the angels in heaven will know that date,” Grandma assured me. I believed my grandma more than I believed some fanatic holding a sign, and my faith was well founded. The next day dawned just as beautiful as any other day.

Now the Mayans, on the other hand, have always fascinated me. I first read about them in social studies in elementary school. I couldn’t think of anything more fascinating to see than the Mayan structures, unless it was the pyramids of Egypt. I dreamed of wandering through a jungle and coming up moss-covered ruins.

Is it any wonder that when my son and daughter-in-law invited me to Mexico several years ago that I was luke warm to the idea until they mentioned we’d be staying close to the Mayan ruins? Then I was all eager to go and number one on my list of things to see was Chichen Itza, or Chicken Pizza as my son called it. Of the four of us, I was probably the only one who was thrilled to be wandering around in the sweltering heat and pushing past the droves of locals hawking cheap tourist trinkets.

Always one to push the lure of Mayan culture to the limits, I went to a closer attraction the next day on my own. Unfortunately, that day was the closest I’d ever come to heat stroke and that took a little bit of the fun out of it for me.

But, on day one, I had absorbed a lot about the Mayan culture. They were violent people who believed in rewarding the victors of “ball games” by allowing the team leader, or captain, to serve as a sacrifice to the gods. I’m thinking that my heart wouldn’t be much in a game if winning meant I would be beheaded.

The Mayans may have seemed like mythical, powerful people with a vision of life, but they were selfish people who used their superior power to inflict unspeakable pain upon others to promote their beliefs. They built their temples, buildings, and structures to benefit the elite group of leaders.

Sounds impossible, doesn’t it? Or maybe not so much if you just look around. Here at home, now, we just witnessed an unspeakable disaster in an ordinary community and rather than respectfully allowing the families to mourn, we are intruding with the media. Politicians are scrambling to make their point as to why their political stance on constitutional rights or gun control is the answer to preventing disasters in the future. I’ve seen this disaster blamed on everything from lack of prayer in school to not allowing teachers to pack side arms with their lunchboxes. If the truth is told, there is no simple answer because this isn’t a simple problem. A lot of worlds ended at Sandy Hook, and it wasn’t because a Mayan calendar predicted it.

All I can say is, that if I didn’t believe my Grandma Whittle and figured that if the angels in heaven didn’t know when the world was going to end, I wouldn’t have any money left in the bank today. Nope. I would have spent every blasted penny and had one heck of a good time in the process. I wouldn’t be sitting here at home; I’d be with my family sharing every happy memory I could.

Obviously, since I’m just watching TV…not something that even gets close to the bucket list…I’m expecting tomorrow to be just another day. As long as I don’t have visions of jungles, winning ballgames, or watching heads roll, I plan to have just another ordinary night and wake up to a new day tomorrow. While I’m at it, I’ll just thank God that I’m not a Mayan.

Copyright © Dec 2012 by L.S. Fisher

Tuesday, December 18, 2012

Where There’s Smoke, There’s Flames


My little fire earlier this week wasn’t the first one I’d had, but I was a little out of practice and might have slightly overreacted. The last fire happened when my kids were little and we lived on Newland Hill—not too far from where I live now.

That time, the fault was a wood stove with a pipe too close to the ceiling and an inexperienced fire builder—me. Probably the funniest part about the story was that Eric was a little boy and he was in the bedroom where the fire started. He was blissfully playing the chord organ and hadn’t noticed that the ceiling was on fire.

I got Eric out of the bedroom and ran to the kitchen to see what I could get some water in to throw on the flames. I found a large mixing bowl and ran across the floor. I looked up at the flames eating away at the ceiling and hesitated as I thought about what a mess it would make. Then, I realized that that wouldn’t be close to the mess the fire could make.

I gave a mighty heave and sure enough the flames were fewer. I ran back through and dialed my sister-in-law and handed the phone to Eric. “Tell her to call the fire department,” I said. I knew Dinah’s number but didn’t have a clue what the fire department’s number was, and believe it or not, we did not have 911 service.

Finally, on one of my trips back through, I grabbed the phone and ordered the kids to go outside. “I think I’ve got it,” I said, “but they should probably check to make sure it isn’t smoldering anywhere.”

I called Jim at work and Marcie, the unambitious secretary informed me that he was on a ladder and couldn’t come to the phone. “We have a fire at our house,” I said. “I need to talk to him now.” Needless to say, Jim and my inlaws beat the fire department by fifteen minutes.

Later, my sister-in-law told me that Eric’s voice was so high that she didn’t recognize him, and all she could think of was that some little kid’s house was on fire and in desperation, he had called her number.

When the fire department arrived, they chewed me out for  putting the fire out on my own. I really think the house would have burned to the ground if I’d just gone outside and waited for help to arrive.

A few weeks ago, my ancient microwave finally bit the dust. It quit working and smelled like an electrical fire. I wasn’t home at the time, but Eric took it out and set it on the porch and tried to get the smell out of the house.

I went without a microwave for several weeks much to everyone’s surprise.

“How are you cooking your oatmeal in the mornings?” my daughter-in-law asked.

“The old fashioned way,” I said. “I use a pan.”

I finally broke down and got a new one because, let’s face it, that caused more dishes to wash.

I scoffed at my youngest son when he said I needed to rethink how long to cook things with a “real” microwave instead of one so old it had a dial and the strength of a strong light bulb. “We have one at work that has a higher wattage. I know how to use a microwave,” I said.

Sure enough, I could cook oatmeal in my new microwave and warm up my coffee when it got cold. Not a problem.

Sunday, I wasn’t feeling too well and thought that a baked potato sounded good. Without a clue as to how long it took to bake a potato in the new microwave, I proudly use the preset for “baked potato” and wandered back into the living room to continue watching a show on my DVR.

Suddenly, I heard a strange popping sound in the kitchen, then a slutter, and crackling. I jumped up and as I rounded the corner, I saw a potato in full blaze in the oven. I shut it off and without hesitation, threw some water on it. Soon I had the fire out. Then, I remembered to unplug the microwave.

“You should have used flour,” someone told me.

“Well there was a small sack of flour on the counter, but it wasn’t a grease fire. The water worked,” I said in my own defense.

“Don’t use that microwave until you have it checked out.”

“Not a chance,” I said. “It’s slightly melted inside the door. Good thing I bought the extended warranty.” Or, it really didn’t matter since that was for two years instead of one. Guess that oven’s going back under that, “in case you are unhappy for any reason” clause.

The house was filled with a thick haze of smoke when it occurred to me that not one of my smoke detectors had gone off. Guess I forgot to change the batteries when we “fell back” this year. Better put that on my to-do list before I get my new, new microwave.

Copyright © December 2012 L. S. Fisher

Sunday, December 9, 2012

I Can See Clearly Now


One thing about losing your eyesight when you are young is that you don’t consider poor vision a sign of aging. Lately, I’ve been having some problems with my vision in addition to the nearsightedness that hit me when I was thirteen years old. At that time, I was blissfully unaware I had a problem until I couldn’t read the math problems the teacher wrote on the blackboard.

When I got my first pair of glasses—bifocals, no less—the most amazing thing to me was that I could see the individual leaves on trees. It was a real plus to be able to recognize people at a distance too. Yes, everything more than a few feet away was pretty much a blur.

Lately, I’ve been having vision problems again. This time, I’m having trouble seeing up close. I know you are thinking that un-huh, everyone seems to get farsighted as they get older—or else the arms aren’t long enough. I still have bifocals on my glasses, but I can see better without them when I’m trying to read Facebook on my cell phone, or even reading my book at night.

A few weeks ago, I had my eyes examined, and my prescription had changed slightly. Since it was such a small change, I decided to wait until after the first of the year so I could get new frames. In the meantime, and maybe even after getting my new prescription, it’s just easier to take off my glasses to see.

One night last week, I was lying on the bed, reading a post on Facebook. I took off my glasses to see better. I decided to respond to a post, and I just don’t type all that quickly on my cell phone. Eventually,  I shifted to a more comfortable position and finished. I picked up my glasses to put them back on and they were smashed flat. The earpieces lay flat against my forehead. Well, what the heck are you supposed to do with a pair of glasses like that?

For a few seconds, I thought about what it would to see the world as a blur again and not be able to recognize people. That is something that happens all the time in the Alzheimer’s world. Often, visual problems for someone with dementia isn’t eyesight, but rather a perception problem. Damage to the brain may keep them from being able to interpret what their eyes are seeing. Eyeglasses may not be the answer to this type of vision problem.

A person with Alzheimer’s can have several different vision problems. They may become lost because they cannot interpret the familiar landmarks their eyes see. A person with Alzheimer’s may have problems detecting motion. This difference is sometimes described as comparing how most of us view the world as a movie to a person with Alzheimer’s seeing a series of still photos. Another vision problem is with contrast. It may be confusing for a person with dementia if everything in the room is the same color. They may stumble over an object, that to their eyes, blends in with the background.

Knowing my vision problems could be solved with glasses, I rummaged around in the drawer where the old glasses live and found a gigantic pair from the late eighties. Nope, didn’t want to go there even if they are now “retro” and back in style. I finally found the most recent pair of glasses prior to the ones I pancaked and decided I didn’t like the way they looked. Eventually, I found a pair that I liked and put them on.

Whew. Don’t know what I would have done without glasses. I couldn’t have driven to work, or been able to do anything once I got there. Someone teased me saying that I could have just Duct-Taped the earpieces back on. Although that seemed ludicrous,  I have some photos of me taken when Jim was still in the service and we lived in Manhattan, Kansas, and I’m wearing a pair of glasses with one of the earpieces taped back on. That was during one of the periods when I wore contact lenses most of the time, and frankly, with a little baby and on army pay, it just wasn’t that important.

I think the most amazing thing about the old glasses is that I can read my Facebook just fine with them on. Isn’t that just a little bit weird? Since I smashed my glasses flat, I can see clearly now. Kind of makes me wonder if I want that new prescription after all.

Copyright © December 2012 by L.S. Fisher
http://earlyonset.blogspot.com 

Sunday, December 2, 2012

Grief and Closure


My brother Donnie’s memorial service Friday was a reflection of his life and provided closure for our family. Our family pulled together to plan a tribute that combined displays of personal items and pictures with personal stories, often humorous.

Donnie had suffered from multiple strokes brought on by diabetes. Donnie had been in a nursing home for four years. During that time, his quality of life degenerated. He was often cantankerous and always hard to understand. The strokes had affected his speech and it was common to have to guess what he was saying—often wrong—or to ask him to repeat himself.

Although a different cause, in many ways, Donnie reminded me so much of Jim’s dementia journey. They both became dependent on others to take care of them as their conditions worsened. Donnie and Jim both had mothers who remained committed to caring for them. My mother-in-law didn’t miss many days looking after Jim, and my mother not only looked after Donnie, but also moved to town so that she was within a few blocks away from the nursing home.

A serious illness is hard on the entire family, but nothing can compare to a mother’s heartbreak of watching a child, no matter how old, develop a terminal condition. It just isn’t in the natural order of life for parents to outlive children. From the time a child is born, parents see that child as their legacy and someone they can love and cherish for the remainder of their lives.

Whether a loved one has Alzheimer’s, strokes, diabetes, cancer, or hundreds of other conditions, the grief is ongoing for family members. When you see someone fighting for life, or accepting that death is the only outcome, the grieving process begins long before his or her final breath. Grief in these circumstances is ambiguous, without an end in sight. Throughout the course of the illness, there is no closure, and if your loved one is unhappy or in pain, that distress becomes a part of your every waking moment.

Family members and caregivers often feel guilty that they are able to enjoy many of the things their loved one can’t. Yet, complete happiness or enjoyment is illusive when always in the back of your mind is the thought that you need to provide a level of companionship and comfort for your loved one who is in the nursing home, hospital, or perhaps still at home.

If you are a primary caregiver, your loved one is on your mind when you wake up in the morning and the last thing that crosses your mind when you go to sleep at night. You are constantly second guessing yourself as to whether you have done everything possible to make life as comfortable and fulfilling as you can. You may have left your loved one in the care of professionals, but you know they have others to tend to and you are afraid that something will fall through the cracks.

I know that after Jim wasn’t able to feed himself, or even get a drink of water on his own, it was something I worried about constantly. It eased my mind to drop by the nursing home each night after work and on weekends to make sure he was okay. If I wasn’t able to go, I knew that other family members would check on him.

I know that my mom will now be at loose ends and find herself feeling like she is forgetting something as she goes through this transition from being a primary caregiver to leading an ordinary life. It will be months before life returns to normal.

Caregiving is an all-consuming condition that affects body, mind, and spirit. It is a labor of love that becomes a way of life.

Copyright © December 2012 by L.S. Fisher
http://earlyonset.blogspot.com

Thursday, November 22, 2012

Giving Thanks for My Brother


This morning I woke up with a sense that the world had changed—and as soon as I cleared my mind, I knew it had. I woke up with grief on my heart, but joy in my soul. After spending two days and a night with my brother Donnie, I had come home to rest and prepare to stay Thanksgiving night, if it was needed. It wasn’t. I hadn’t been asleep long last night when my sister Terri called to let me know that at 11:30 Donnie had gotten his wish for a peaceful transition from this world to the next.

Often, Donnie expressed his wishes to just “go ahead and die.” And he came close many times, but for some reason his body betrayed him and kept on living.

Each time, as he groused around about not dying, I could always coax a smile out of him when I would say, “You don’t get to pick your time, and it just isn’t your time, Virginia Fisher.” Donnie often told the story of coming to the hospital with my mom to visit my mother-in-law when she was gravely ill. Virginia said her good-byes to everyone and then was fighting mad because she didn’t die once she was ready.

Mom always let Donnie know when I was coming to visit. The last time I visited him, he had refused his pain medication so he would be awake when I got there. After a few minutes, he pushed his buzzer to let them know, in no uncertain terms, he was ready for his pain medication. “It’s your fault,” he said, but I knew he was just teasing me. On a more serious note, he said,  “I’m either asleep or in pain.”

When I visited Donnie, he was usually in a bad mood and had a lot of complaints. I would let him rage on and then steer him into reminiscing. He seemed to come to life when I brought up some of our shenanigans.

Although it seems that the “three little boys,” as we called Donnie, Marshall, and Mitchell, spent most of their time playing together, Donnie and I seemed to have this experimental flair for food. If I needed someone to share a lemon with, Donnie was always willing to eat the other half. One time we ate all Dad’s Tums without regard for how he was going to treat his heartburn. Another time, it seemed that toothpaste sandwiches had to be good. That was probably our worst idea.

In September, close to his birthday, Donnie went through a bad spell and wasn’t expected to make it through the weekend. He had not responded to staff or hospice. When I walked into his room, I said, “I didn’t bring you a lemon.” He quickly responded with “What kind of sister are you?”

Our conversations weren’t always just banter. Once he told me I had no idea what it was like for him. I agreed that I didn’t know what it was like. Sometimes I felt downright guilty that I have been so blessed and his life has been one of illness and disappointments.

Tuesday when I walked into Donnie’s room, it was the first time he had not responded to my voice. He seemed to be sleeping soundly and comfortably, pain free. Mom told us that last week Donnie told her he had a miracle happen. He said he walked to the nurse’s station and talked to them. He said when he got back, his bed was turned in the wrong direction.

Maybe it was this story that prompted the talk about haunting. In our family, there are no “sacred cows” and we’ve always been open with each other. My sister Terri made it plain to Donnie that she didn’t want him to haunt her. Tommy, on the other hand, told him he could come to see him anytime. I held Donnie’s hand and didn’t voice my opinion on the subject.

At one time, everyone left the room and I had a few moments alone with Donnie. I sang “Amazing Grace” to him. Okay, so he wasn’t in any position to complain about my lack of singing talent, and I think his roommate is hard of hearing. I whispered a few messages for him to pass along.

Yesterday afternoon, I said good-bye to Donnie and came home to rest and pack supplies to stay with him tonight. I was rambling around the house and decided to take a shower. I always do a lot of heavy thinking in the shower and my thoughts turned to Donnie and his “miracle.”

I stepped out of the shower and as soon as I wrapped the towel around me, I knew Donnie was there. I didn’t see him, and I think that was on purpose because he wouldn’t want to totally freak me out anymore than he would Terri. I could feel his presence and an image popped into my mind. He was smiling and walking. I knew he was saying good-bye and that he wanted me to know he was okay and could walk again. Then he was gone.

We always consider that the soul leaves the body at the time of death, but now I believe it may leave even sooner. It was another five hours before he stopped breathing.

Donnie was his own person, and danced to the beat of a different drum. He was often troubled, and in a perfect world, he would not have lived the past half dozen years. We all know this world is far from perfect, and there must have been a reason Donnie lived through out-of-control diabetes and multiple strokes. I don’t claim to know that reason and can’t even hazard a guess. Maybe Donnie knows now, and someday maybe I’ll know. In the meantime, earthly life goes on for the rest of his family and friends, but we are thankful that Donnie is experiencing the joy of reunion and new beginnings.

Copyright © November by L.S. Fisher

Monday, November 19, 2012

Thanksgiving: The Overlooked Holiday


I always thought Thanksgiving got shortchanged when compared to some of the other holidays. In fact, it seems that most people spend much more preparation for Halloween than for Thanksgiving. Just think about it—people buy candy, costumes and plan elaborate parties or “trunk or treat” events. I heard on the news that Americans spent $370 million on pet costumes this year. In fact, nationwide we spend a staggering $8 billion on Halloween.

Before the trick-or-treaters change out of their costumes, the stores are arranging elaborate displays of Christmas items. There’s hardly a pilgrim or turkey to be seen.

Thanksgiving is not considered so much a holiday in its own right as it is a kickoff to the Christmas season. Most people spend their Thanksgiving putting up the Christmas tree, stringing lights, and this year, it seems that many retailers are getting a jump on black Friday by beginning Thursday evening. Seriously? What are they thinking?

It seems that we can’t spend a complete twenty-four hours being thankful. We have to rush right past being thankful to the shopping frenzy. I can tell you right now, there is absolutely zero chance of me shopping on Thursday evening, or Black Friday either, for that matter. Nope, I plan to spend my Thanksgiving Day doing exactly what a person is supposed to do on Thanksgiving—watch the Macy’s Thanksgiving Day Parade, eat myself into a stupor, and maybe do something really exciting and unusual—take a nap.

Thanksgiving has always been one of my favorite holidays since the days when I used the outline of my hand to draw turkeys and color them with bright crayons. Our classrooms at school were decorated with autumn leaves, pilgrims, and Native Americans that we blissfully and without malice referred to as Indians
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For years, our family used Thanksgiving as a reunion time. I loved the holiday—getting together with my brothers and sisters, Mom and Dad. When I close my eyes, I can see our family circled, holding hands as my brother Tommy asked the blessing before we lined up to fill plates from a table groaning beneath the weight of food, food, and more food. Thanksgivings from years past form a tapestry of fall flavors and fragrances in my memories. There was always that nagging feeling that beloved family members might be missing at the next gathering.

After Dad died and Mom moved out of the family home, for several years, we converged on my brother who lived there. Eventually, we rotated the holiday among us “kids” and decided to have it earlier in the year. So, in essence, we celebrated Thanksgiving at my sister’s house in October this year.

Jim is one of those missing from those family holidays now, but still I am thankful that we had almost thirty-four years together. I’m thankful that I learned unconditional love when I was Jim’s caregiver, but that I also received unconditional love from him before the disease took him away.

I still observe the day and it is special to me, although the meal has completely changed from the traditional turkey, dressing, and dinner for few an intimate group of fifty or so. It doesn’t matter how we celebrate, as long as we can take one day of the year to be thankful and reflect on life, family, and the blessings that come into our lives.

There is nothing in this world as precious as family. All other holidays seem to get lost in the process of celebrating, but Thanksgiving is more laid back. Mentally, we can still go “over the river and through the woods” to a more peaceful frame of mind.

Copyright © November 2012 by L.S. Fisher

http://earlyonset.blogspot.com

Monday, November 12, 2012

Hectic Days and Sleepless Nights


My five-year-old grandson spent the night with me recently, and he just wasn’t interested in going to sleep. He wanted me to read The Cat in the Hat which he said he hadn’t heard before. He was so impressed that he asked me to read it again. I’ll have to admit the Cat has been a favorite in this house since my kids were little.

Finally, exhaustion took over—for grandma—and we both headed off to bed. I cannot sleep unless I read. That’s just the way it is for me. Usually, by the time I get to bed, I’m so tired, that I can only read for five or ten minutes. So I picked up The Courtship of Nellie Fisher, a book I’ve been reading on for months. In my defense, it is three books in one, and I’m nearing the end.  

My grandson rolled over onto his stomach and propped his DSI on the pillow. After putting a racing game into motion, he put his elbows on the bed, stuck his hands beneath his chin and watched the cars race around the track.

After reading a few minutes, I put my book down. “Time to turn off your game and go to sleep,” I said. No response. “Come on,” I said, “it’s bedtime.” I leaned closer, and saw his eyes were shut tight. I turned off the game and rolled my sound asleep grandson into a more comfortable position.

I was wide awake at four in the morning. My mind was spinning with all the things I had to do. The more desperately I need sleep, the more elusive it is. After tossing and turning for an hour with no signs of sleepiness taking over, I turned on the light to read for a while.

I looked over at my grandson who was lying crosswise in the bed. I could see his body, but not his head since it was hanging over the edge. Once again, I got him situated.

My sleep problems began with Jim’s dementia. It has been a decade since Jim’s sleep pattern changed so much that it affected both of us. Jim got to the point where he just didn’t seem to need sleep anymore. When he didn’t sleep, I usually didn’t either. Sometimes, I was so exhausted that I didn’t wake up when he crawled out of bed to wander through the house—or out the door.

I remember the night I woke up from a sound sleep and he was gone. I jumped in the car and went looking for him. I was frantic until I found him meandering down the road as if it was perfectly normal to be walking in the middle of the night wearing sunglasses.

For someone who didn’t want to sleep at night, Jim always seemed to take a nap, or two, during the day. Then, by evening, he would become restless. This is a common problem known as sundowning.

We were getting about four hours sleep on a good night. Chronic lack of sleep becomes a habit and just being tired isn’t reason enough to go to bed. It’s usually when my eyes start burning or I nod off watching TV that I know it is time to give it up.

Since I have to get up early to go to work, I try to get to bed at a decent hour. When I make a real effort to go to bed early, then I’m wide awake at three or four in the morning and can’t go back to sleep. It really seems like a preference as to whether I want to stay up late, or wake up in the middle of the night.

My sleep, or lack thereof, goes hand in hand with how hectic my days are. From time to time, I’d just like to sit down and do nothing for an hour without feeling guilty. Between hectic days at work, volunteering, writing, and my publishing business, I’m no longer just burning the candle at both ends, I’ve torched the middle as well. I guess if the candle burns out, maybe the darkness will help me sleep as soundly as my grandson.

Copyright © November 2012
http://earlyonset.blogspot.com


For more about sleep changes visit http://www.alz.org/alzheimers_disease_10429.asp

Sunday, November 11, 2012

To Love a Veteran


Now, the election is over and, once again, the airwaves are returning to normal. It seems that in every political contest this year, whether the office of dogcatcher, or that of President of the United States, it was a sparring contest to see who could be viewed as the most patriotic. Flags came out in abundance and even the states turned red and blue on the political map
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In their fervor to be elected, it would seem that politicians seemed to forget that we are all players on the same team. Soldiers fight for freedom for all of us without regard to which political party we support, or what church (if any) we attend, whether we are millionaires or living paycheck to paycheck, or even if we have no paycheck at all.

We are American’s every day and enjoy the freedom that was purchased with the lives of sons and daughters who fought to keep us that way. Yes, we should celebrate our freedom every day, but instead we honor our veterans twice a year—Memorial Day and Veteran’s Day.

Two days. Think about that. Shouldn’t it be more like honoring veterans 363 days and maybe allowing ourselves to be totally selfish and forgetting them two days a year?

Memorial Day is a day to remember those who died in the service of our country, but Veteran’s Day is a day to show respect and honor all veterans. Originally known as Armistice Day, the eleventh hour  of the eleventh day of the eleventh month was to mark the end of World War I, the “war to end all wars.”

As we all know, the First World War was, unfortunately, not the end of all wars. In 1954, the holiday was changed to honor veterans of all wars. Then after a brief time when it was changed to coincide with a three-day weekend, it was returned to November 11 without regard to the day of the week.
  
Today is a time to turn our thoughts and gratitude toward those veterans who put their lives on the line and count our blessings for living in a country where our individual rights have been guaranteed by our veterans.

I don’t have to look far to see veterans to honor. I have nephews who previously and currently serve in the military. My dad fought in World War II, my brother Tommy was wounded in Vietnam, my brother Jimmy sailed into danger zones throughout his career in the Navy, and Jim’s tour of duty in Vietnam left him wounded in body and spirit.

During the World Wars and following the wars, veterans were hailed as heroes for offering up the ultimate sacrifice to protect our country. When the war was over, thousands of soldiers returned to parades and crowds of grateful Americans.

Things were pretty clear-cut until Vietnam. That war stirred up emotions during the turbulent Sixties that threatened to destroy the unity of our people. Veterans returning from the “conflict” were jubilantly greeted by their loved ones, but the nature of the war brought veterans home one-by-one. When Jim returned home from Vietnam, he was greeted by three people—his mom and dad, and me. That seems like a small reception for someone who just spent a year in the jungles of Vietnam experiencing atrocities that would haunt him even through the throes of dementia.

It takes a lot out of a country boy to have to kill other human beings. I thought the war was over for Jim when he came home. Instead, like many others who love a veteran, I eventually learned that the war would never be over for him. No one knew the pain in Jim’s heart the way I did.

On this eleventh day of the eleventh month, I would like to wish a happy Veteran’s Day to all who have served our country and to those who are serving our country now. Although today marks a special day for veterans, they deserve credit for every day of the year that we wake up in the United States of America.

Copyright © November 2012 by L. S. Fisher
http://earlyonset.blogspot.com

Sunday, November 4, 2012

A Weighty Problem


Those of us who struggle with weight know that carrying around additional pounds increases our chances of diabetes and heart conditions. I always figured that weight is so hard to manage because, as humans, we have to eat. It’s not like some optional thing we can just quit cold turkey. Nope. It’s always there no matter what.

I made the mistake of stepping on the scales after Business Women’s Week when we seem to eat our way through the entire seven days. We had lunches and dinners every day. Then to top it all off, we had meals catered in at work during training for our new computer software. As if I hadn’t consumed enough calories, the week ended with our Sedalia Business Women’s annual chicken dinner.

I know that a few extra pounds adversely affects my blood pressure, cholesterol, blood sugar, and triglycerides. We are considered to have metabolic disorder when we have high readings in two or more of those numbers…and in my case, it is “more.”

Each year, I dread the health survey our insurance company insists that we complete. “It’s depressing,” said one of my co-workers. I have to agree with that assessment. Often, I go into the survey feeling pretty good, especially for a woman of my age. I may have the occasional ache or pain, but in general, I’m rarely sick. Then, I take the health survey and it indicates that I’m just a heart attack waiting to happen. The survey says I’m at high risk for this and for that until I just want to throw my hands up and say, “Lord, take me now.” The only good news I ever receive from the health survey is high marks on the substance abuse, mental health, and safety sections. Otherwise, I think I’d flat line on the health survey.

Of course, all my problems are from weight, and it’s not as if I haven’t tried every diet that promises to melt away the pounds. The bad thing about diets is that sometimes they work so well that I wonder how I ever let my weight get out of hand. Usually, a diet requires me to eat a certain food and avoid others. Once in a while, I’ll see a diet that says “and you can eat dessert!” The aforementioned dessert might taste a lot like sweet cardboard, but hey, if I’m hungry enough that might be just what I need. It seems that no matter what the diet, as soon as I revert to anything like normal eating habits, the pounds pack back on until I’ve reached, or exceeded, the same weight that drove me to diet in the first place.

As if being overweight isn’t enough of a problem on its own, now obesity has been linked to cognitive decline. Being obese and having metabolic disorder accelerated decline in the study group. It isn’t really just a slight increase either—the increased risk is 22.5%. I guess the only good news coming out of this study is that by losing weight and lowering the biomarkers, you can cut your risk of obesity related cognitive decline.

This study just underscores the validity of the Alzheimer’s Association’s healthy brain imitative. The Alzheimer’s association recommends a healthy diet, such as the Mediterranian diet, which limits red meats, but includes vegetables and whole grains. Along with the healthy diet, exercise will increase blood flow and oxygen in the brain. Isn’t this what our health survey says is good for us? Oh, well, maybe there’s a reason for it after all.

The good news from all the studies on Alzheimer’s disease is that sometimes food has beneficial qualities that help fight dementia. I love it when I see that coffee helps ward off dementia, or even better is a new study that found dark chocolate helps keep the brain sharp. I’m not making this up either! Okay, so the study was conducted by Mars (the candy bar people) but that doesn’t mean it isn’t true. Cocoa has flavanols like those found in red wine, grapes, apples, and tea.

In theory, it sounds simple and easy, but putting healthy habits into action is difficult. Maybe if I’d pay more attention to diet and exercise, my problems wouldn’t be so weighty. At least not so very, very weighty.

Copyright © November 2012 by L.S. Fisher
Earlyonset.blogspot.com

Wednesday, October 24, 2012

More Questions Than Answers


Questions are a good way to learn. My grandkids have always known the value of well-placed questions. Their vocabulary is rich with why? and  how? Curiosity is a learning tool, and children have no qualms about asking questions about any topic.

At work, my co-workers often say, “I have a question for you.”

I like to reply, “I have answers.” Sometimes, I don’t really have answers, but until proven otherwise, it seems like a good response to the statement.

Then, there’s always the contingent that answers questions with questions. “Where do you want to have dinner?” might be answered, or should we say a non-answer, could be, “Where do you want to eat?”
  
On Sunday, Pastor Jared introduced me to a new concept: praying through questions. By forming prayer as a question, we can focus on what is important to us. It is amazing how easy it is to ask questions—especially for a person like me who has more questions than answers.

Some of the bold questions I have for God—what causes Alzheimer’s disease? Why can’t researchers find a cure for Alzheimer’s?

After all, isn’t research a matter of knowing what questions to ask, and then embarking on a quest to find the answers? Equally important is the wisdom to recognize the answers that are revealed to us.

Knowing how to ask the right questions is a methodical way to find solutions. When researchers try to find a cure for a multifaceted disease, Alzheimer’s, for example,  they ask a series of questions. Some of the brightest minds in the country have ask questions about Alzheimer’s.  

I find it interesting to check health news sources to see what studies and approaches are being used to find treatments or a cure for Alzheimer’s disease. So I search with the question in mind—what is being done about Alzheimer’s?

Painstaking research shows that changes in the brain foreshadow development of Alzheimer’s. These changes can take place a dozen years before any evident symptoms. New imaging technology allows researchers to see these subtle brain changes. In 2013, five drugs will be tested on 1500 individuals at risk for Alzheimer’s. The drugs being studied are designed to prevent Alzheimer’s from ever developing. How can Alzheimer’s be stopped when we don’t really know what causes it?

One researcher, Randall Bateman with Washington University in St. Louis, sees the development of Alzheimer’s disease as being much like the chain reaction that leads up to heart disease. How effective new drug therapies will be is uncertain, but it is certain that new drug therapies are much more likely to help future generations that those with the disease now. Why can’t a cure be found now, for the people who already have Alzheimer’s?

Maybe we need to trust in a higher authority to rid the world of Alzheimer’s once and for all. Pastor Jared’s message reminded me that you must ask, if you want to receive. Without questions, there would be no answers.

Copyright October 2012 by L.S. Fisher
http://earlyonset@hotmail.com

Monday, October 8, 2012

A Season of Change


Some seasons are more challenging than others, and it seems that the seasons of change are the most difficult. As much as we get bored with the same old, same old, those days are more restful.

I woke up at three o’clock this morning and added a half dozen reminders to my cell phone task list before the alarm went off at five.

Why am I so geared up? We have changed computer software at work and today I close the month end books in a completely different way than I have for the past thirty years.

It’s not that I think I’m too old to learn, and most of the time I’m confident that everything will work out, but at three o’clock, nothing seems to be easy. My preoccupation with the changes in the workplace and the way that time seems to keep marching along, have seemed to overloaded the circuits in my brain. I’ve found myself forgetting more than I seem to remember. I’m usually reliable not only in my professional world but in my volunteer world.

It could be that I’ve taken on way too many things—ya think? It has come to the point that I need to practice the word “No” or the phrase “That doesn’t work for me.” I need to back off, but can’t decide what projects or causes need to be cut. I only take on those things I’m passionate about or that I enjoy.

My life is so busy that I don’t have any down time. I’m not recharging my mental batteries, and I’ve drained them to the point that I think they may need to be replaced. I’m not sure how that works.

These forty hour intense, nothing is routine anymore, workdays and evenings filled with working on one thing or another is wearing on body and soul. Oh, how I long for a morning drinking coffee and watching some mundane show on TV while I leisurely decide what I want to do that day.

The thing about change is it requires us to be flexible and adaptable. We can embrace change or resist change, but darn it—it’s going to come either way.

Deep inside, I love a challenge. I think I’ll just drink another cup of coffee and go for it. Thank goodness there’s only one Monday in a week and only one day that is the first day of any change.

Copyright © October 2012 by L. S. Fisher
http://earlyonset.blogspot.com

Monday, October 1, 2012

Inspiration--Good for Your Health


I attended a conference in July where Dr. Mike Perko talked about inspiration. He talked about how other people can inspire us, and how we can inspire others through volunteering. Inspiration can help us to accomplish more than we ever dreamed possible.
 
One of the inspiring people Dr. Perko talked about was Oscar Pistoruis, from South Africa—the fastest man without legs. You may remember Oscar from the Olympics. Oscar ran the 400 meter semi-final race amid some controversy as to whether his carbon fiber blades gave him an advantage. He finished last, but was by no means a loser. He inspired people all over the world and more important than where he finished in the race was that he ran the race.
 
In church this morning, I learned that the origin of the word inspire means to breath in. Inspiration is literally the breath of life. Inspiration is what makes us more than our physical beings. When we are inspired, we change how we think and even how we feel about ourselves.
 
How less meaningful would life be without inspiration? Without inspiration, we would go through life without inhaling that sense of awe and wonder that boosts our spirits and gives us a feeling of balance with the world around us.
 
It doesn’t take fame or fortune to inspire others. One of my inspirations is my niece, Angie, who is battling cancer. Angie says that cancer gave her clarity. Things that once seemed important have been replaced with those that really are important—family and love. Angie posted on Facebook that her hair had started coming out in clumps, so with the help of her best friend and her husband, clippers, and a lot of sobbing, the hair came off. She said it would probably be awhile before she allowed any pictures to be posted. Two days later Angie posted a picture where she is wearing her beautiful smile and proudly sporting her new ’do. Today she posted a picture of her and her best friend, who shaved her own head too, with the caption, “Baldies stick together.” When someone faces adversity with a smile and a lust for life, it inspires others.
 
We find the purpose of our lives from the events that drop us to our knees, the times that touch our hearts and our souls. Jim’s dementia was that defining moment in my life when I felt a call to action and became an Alzheimer’s volunteer. It wasn’t long before I realized that my volunteer work helped me as much as it did anyone else.
 
Research shows that volunteering can be good for your health, attitude, and feelings of self worth. Volunteers are less depressed and healthier than people who do not volunteer. Older adults who volunteer for about two hours a week have additional benefits of higher function levels and increased longevity.
 
When you think about it, volunteering helps get your mind off yourself and increases your awareness of the more important aspects of life. Or as Angie would say, “Clarity.” 
 
Most of us aren’t in a position to change the world. What we can do is work on our little corner of the world to make it a better place. We can inhale breath from those who inspire us and exhale breath to help pass that inspiration on to those we care about, those we love. 
 
Copyright © October 2012 by L. S. Fisher