Showing posts with label Alzheimer's wandering. Show all posts
Showing posts with label Alzheimer's wandering. Show all posts

Monday, January 8, 2018

Back in the Groove

For the past two months, my excuse for hibernating is “so busy with the holidays, you know.” So what if I’m busy binge re-reading my Tony Hillerman Leaphorn and Chee books. 

There isn’t a better reason for sticking close to home than hearing everyone you know has the flu, or some other mysterious virus. I’ve limited my social interaction to avoid giving or receiving unwanted gifts of disease.

Now, the New Year is here and the “holidays, you know” are so last year. Last weekend was busy from start to finish. By today, I was totally exhausted. It didn’t help that I got four hours sleep for two days in a row followed by one thirteen-hour night to make a healthy seven-hour a night average.

I blame my four-hour nights on years of caregiving. Jim never seemed to need more than four hours of sleep, so that meant if I wanted to keep track of him, I couldn’t sleep while he was up wandering around. In the story “Gone in the Night” I re-live every caregiver’s nightmare of waking up alone in bed, alone in the house, and thinking I might be alone in the world.

Excerpt from Indelible:

Although I had a sense of urgency, I drove cautiously because I didn’t want to hit him with the car. I had no idea how long he’d been gone, and the farther I traveled without seeing him, the more I panicked.

I reached the crossroads and without hesitation, turned left, choosing Jim’s normal route. I pressed onward, fear and worry jockeying for position in my mind. I rounded the next corner, headlights slicing through the darkness. There he was! The tension drained from my body, replaced with elation and relief.

Jim was fully dressed wearing jacket, jeans, his “Vietnam Veteran and Proud of It” cap, and his sunglasses. He seemed to be unaware of the car and continued his measured tortoise pace, cane grasped in his left hand. I pulled over and stopped behind him, climbed out of the car, speed walking to catch up with him. I reached out and wrapped my fingers around his bicep, and he stopped as if he had applied his brakes.

To be honest, when Jim first went into the nursing home, I didn’t think I’d be able to sleep alone in the house. It turned out that I was so exhausted that it took me months to catch up on my rest. Once I did, though, I was back to my four-hour sleep nights. I still struggle to get anything like a normal night’s sleep. It concerns me because I know chronic lack of sleep is a health hazard.

I need to get back in the groove. I took down the three Christmas trees and removed ornaments from the two trees that are lit year round. I need to finish taking down and putting away my huge collection of nutcrackers. For the first days of January, the twelve days of Christmas hadn’t finished, but that excuse won’t work now. “Maybe I’ll just leave everything up and won’t have to decorate next year,” I told Harold.

“You would have to dust them,” he pointed out. He knows how much I detest dusting whatnots.

“Guess I’d rather put them away than dust them,” I said.

I’ve grown fond of putting off until tomorrow that which I do not want to do today. Getting back into the groove isn’t all that easy. I think I’ll start…tomorrow.

Copyright © January 2018 by L.S. Fisher

#ENDALZ 

Sunday, September 15, 2013

Wandering and Silver Alert Legislation

Jim wandered off many times after he developed Alzheimer’s. The first thing I learned as a caregiverwas immediate action was necessary to find him. I can’t count the number of times he disappeared. It only took a moment of inattention, or the misconception that someone else had eyes on him. Whether he disappeared mid-morning at a mall in Columbia, early afternoon at Silver Dollar City, late afternoon at the airport in Las Vegas, or from our home in the middle of the night, a search began immediately.

Unfortunately, wandering is a common problem for people with Alzheimer’s. Sixty percent of people with dementia will wander causing anxiety for the caregiver and creating a life threatening situation for the wanderer. Beginning the search immediately is key to finding your loved one safely. Statistics are on your side since ninety-four percent of the time they will be found within one and a half miles of where they disappeared.

You can take a few steps to help find your loved one. Alert neighbors of the situation and ask them to call you if they see your loved one walking alone. When searching, look in the direction of your loved one’s dominant hand—that is the direction they will usually go. Use Medic Alert+Alzheimer’s Association Safe Return or Comfort Zone (an electronic device). If you don’t immediately locate your loved one, call 911 and report them missing.

To ensure that when you call 911, the appropriate steps are taken to activate an immediate search, legislation should be in place. Legislation geared toward a Silver Alert should encompass all persons with dementia regardless of age. Jim had early onset dementia and would have been too young for the Silver Alert in states that identify only persons sixty-five or older with dementia. Missouri has an “Endangered Person Advisory” which could include anyone who may be in danger because of age, health, mental or physical disability, environment or weather conditions.

If you have a loved one with dementia, it is important to know the laws in your state and work toward legislation to make sure anyone with Alzheimer’s is included regardless of age. The law should also have provisions to activate the system based on a caregiver statement since many people wander before they have a formal diagnosis.

An important part of legislation is training for all emergency personnel. Proper training can make all the difference in finding the person with Alzheimer’s quickly using search techniques specifically tailored to persons with dementia. The immediate emphasis should be on a search of the local area. Quick and educated response is key to survival.

Silver Alerts are state programs designed specifically for vulnerable adults who have wandered. The search for adults is different than those used for AMBER alerts. AMBER alerts use statewide alerts which are not typically needed when searching for an adult wanderer. Also, since most wandering adults, like Jim, wander repeatedly, alerting everyone statewide each time an adult wanders could cause the public to become desensitized. This could do more harm than good by reducing the statewide response in cases where it is needed.

The goal is to find wanderers within twenty-four hours and reunite them with their families. The longer the person with dementia is gone, the chances of finding them unharmed is correspondingly diminished.

More than 125,000 search and rescue teams are activated each year to search for missing persons with dementia. This does not include the countless times that family members search for and find their loved ones. Kimberly Kelly with Project Far From Home estimates that as many as three million people with dementia wander away from home each year.

We were fortunate and Jim was always found quickly by either family, friends, neighbors, and during the mall disappearance, security guards. I was young enough to go searching for Jim, but not every vulnerable adult has a caregiver who can look for them. A system needs to be put in place, nationwide, that will activate an immediate search for vulnerable adults with a goal to provide safe return to their homes.

Copyright (c) September 2013 by L.S. Fisher
Http://earlyonset.blogspot.com

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