Monday, March 28, 2022

Memory Week—State Advocacy

 

Earlier this month, I participated in the Alzheimer’s Association Greater Missouri Chapter Memory Week. For the second year, we met virtually. Between March 7 and 10, I attended webinars, participated in Zoom programs, and  joined a virtual meeting with Senator Lauren Arthur.

I sent emails to my state legislative officials, Representative Kurtis Gregory and Senator Sandy Crawford about our three legislative priorities:


 1.  Fund Alzheimer’s Grants for Respite. House Bill 3010 will maintain $450,000 to fund respite support or care related products for families caring for a loved one with Alzheimer’s at home. I was one of the 99% of people who was able to keep my loved one at home longer with respite care.  

2.      Continued Funding for the Structured Family Caregiver Waiver. The Structured Family Caregiver Act was signed into law in 2019 with an initial cap of 300 participants. This agency-directed model helps families navigate the  comprehensive and cost effective choices they have to make for persons with dementia. The waiver was approved in February 2020 and funding for this program is included in House Bill 3010.

3.      Missouri Alzheimer’s State Plan Taskforce. In 2021, the Missouri General Assembly re-established the Missouri Alzheimer’s State Plan Taskforce. The Taskforce assesses all state programs that affect people with Alzheimer’s or a related dementia. They update and maintain an integrated state plan to overcome Alzheimer’s. We are asking for an additional five months for the taskforce to produce its initial report to the Governor and General Assembly.

 

None of these programs are high dollar budget items, but can save the state billions in Medicaid  costs for expensive nursing home placement. Family caregivers in Missouri provide free in-home care for their loved ones valued at $4.3 billion.

 

Considering that Alzheimer’s is the most expensive disease in America, I hope Missouri will approve our asks to provide respite funds for caregivers who take on the responsibility of caring for a loved one. We need to care for the caregivers! The Structured Family Caregiver Act and the Alzheimer’s State Taskforce will put our state on the right track to provide services necessary for the 120,000 Missourians with Alzheimer’s and their families. These programs are designed to protect caregivers from emotional distress and financial ruin while keeping loved ones with dementia at home as long as possible.

 

During Memory Week, Secretary of State Jay Ashcroft addressed the advocates. He talked about his personal connection to Alzheimer’s disease. His maternal grandfather had Alzheimer’s and his maternal grandmother was his primary caregiver. He spoke about the Secretary of State Vulnerable Citizens Services Unit. Older adults are often the target of scams. Affinity fraud is especially insidious. Someone will infiltrate a church, temple, or civic organization with the sole purpose of selling fraudulent investments. Avoiding fraud is as simple as ABC: Ask questions, Be cautious, and Call the SOS office. The hotline to report scams is (855) 653-7300.

 

Please be vigilant of loved ones with dementia when it comes to scams, and be fearless when it comes to taking action to stop anyone from taking advantage of them.

 

Copyright © March 2022 by L.S. Fisher

http://earlyonset.blogspot.com

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